I've created this page because I want to make a difference.
Help Us Support SCN2A Research and Families Like Ours
When Will was a baby, a neurologist told Dave and me to prepare for a very short life for him. Hearing those words was one of the most devastating moments of our lives. We had no answers, no road map—just uncertainty. But we refused to give up on him. We found new doctors, built a team of support, and focused on giving Will the best life possible.
For 14 years, we lived without a diagnosis, navigating a maze of challenges with no clear way forward. Then, in 2018, we received the diagnosis: SCN2A, a rare genetic condition that affects Will’s brain and body in ways we never could have anticipated.
Though the journey has been difficult, knowing the cause of Will’s challenges has brought us clarity, direction, and a renewed sense of hope. But we know that so many families are still waiting for answers. SCN2A Australia is leading the charge to raise awareness, support research, and help families like ours better understand and manage this rare condition.
Today, as Will turns 23, we’re asking for your help. Every dollar raised will go toward funding vital research, supporting families, and giving more children and adults with SCN2A a brighter future.
Your donation, no matter how big or small, makes a world of difference. Together, we can bring hope and change lives.
Donate Today to help us unlock answers, raise awareness, and support life-changing research for SCN2A.
